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by Bill Snyder | Thursday, May. 19, 2016, 10:13 AM
Researchers at Vanderbilt University School of Medicine have received a four-year, $4-million grant from the National Institutes of Health (NIH) to establish a new center for the study of privacy concerns associated with the use of genomic information, the NIH announced this week.
The Vanderbilt Center for Genetic Privacy and Identity in Community Settings will examine the likelihood that lapses in protecting genomic information allow people to be identified, how people perceive such risks and how effective legal and policy efforts are in reducing them.
“We’re really broadening our horizons to think about how history and public opinion and literature affect the way individuals and communities think about privacy concerns,” said Ellen Wright Clayton, M.D., J.D., the grant’s co-principal investigator with Bradley Malin, Ph.D.
“Ultimately the goal is to develop policy recommendations that address the complexity of what’s at stake,” said Clayton, the Craig-Weaver Professor of Pediatrics and a nationally recognized expert on ethics, law and medicine.
Vanderbilt’s is one of four grants awarded through the Centers of Excellence in Ethical, Legal and Social Implications Research (CEER) program of the National Human Genome Research Institute to address questions raised by advances in genomics research and the increasing availability of genomic information.
The other awardees are Johns Hopkins University, University of Utah and University of Oklahoma.
The Vanderbilt effort will be truly “trans-institutional,” said Malin, associate professor of Biomedical Informatics and Computer Science and an expert on genomic information privacy issues.
Faculty members from more than a dozen academic departments at Vanderbilt University and VUMC will be involved. Co-investigators include:
Bill Snyder, (615) 322-4747
Health and Medicine, Reporter, Research Bradley Malin, Center for Biomedical Ethics and Society, Center for Genetic Privacy and Identity in Community Settings, ellen wright clayton, medical ethics, NIH, Reporter May 20 2016
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